Working on a plan

Day 7 of provera and still no period, although I guess it’s not technically supposed to start until after I stop the pills.  I still hate the waiting!

I met with my OB this morning and she was wonderful.  They did put us in the conference room, so I didn’t have to endure the exam rooms  (so the mean receptionist came through- I thanked her when I checked out!).  And bottom line is that my OB is willing to do anything and everything to try to help us out with a future pregnancy, even ordering possibly odd therapies that are not ‘approved’.  It’s so helpful to hear her say that, because you hit a point where you wonder if your doctors are really trying to help you as a person instead of just treat you so they can be done with you (or move you off to another doctor because you are complicated with so many losses).

I did hear some extremely frustrating news at my appointment-  I told my OB’s colleague (my OB was not on call when my last baby died) that I wanted all possible genetic and pathologic testing done on my baby (even though we had done PGS and believed the baby to have normal chromosomes).  I wanted a microarray done in addition to the standard tests.  Well, they did attempt to do a microarray and they just confirmed last week that they did the microarray testing on me.  Now, I can understand that things get contaminated when a fetus is only a few weeks along, the fetal tissue is not as easy to distinguish.  But I lost my baby at 16 WEEKS.  My baby was almost 6 inches long.  How could they not get a clean tissue sample for the microarray?  My OB expressed similar annoyance.  So they think now that they do have fetal cells isolated/growing that they can test by the end of the week.  Fingers crossed.

Honestly, I don’t expect to really learn anything more.  I think everything is going to come back normal.  But I would be so angry to lose a piece of the puzzle when we could have had it.  More information and data always feels useful to me, I guess that’s just the kind of person I am.

And no word from Agency S-  ARGH, they are so bad with communication.  Nothing on that front, unfortunately.

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2 thoughts on “Working on a plan

  1. Grr! I am frustrated for you. With my 2nd loss, after my D&C, I also insisted on chromosomal testing. It was never completed, and I always felt like we were missing answers. I’m hoping they can find some clue that will help make your next pregnancy end the way it should: in a healthy baby.

    Hugs,
    Jo

    • Argh, what is wrong with these pathologists/labs? I just don’t understand why and how this can happen when it is so important. If this microarray were to indicate something was wrong, that would help me so much in so many ways. And either way, we use this data to make important life decisions….

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