Working on a plan

Day 7 of provera and still no period, although I guess it’s not technically supposed to start until after I stop the pills.  I still hate the waiting!

I met with my OB this morning and she was wonderful.  They did put us in the conference room, so I didn’t have to endure the exam rooms  (so the mean receptionist came through- I thanked her when I checked out!).  And bottom line is that my OB is willing to do anything and everything to try to help us out with a future pregnancy, even ordering possibly odd therapies that are not ‘approved’.  It’s so helpful to hear her say that, because you hit a point where you wonder if your doctors are really trying to help you as a person instead of just treat you so they can be done with you (or move you off to another doctor because you are complicated with so many losses).

I did hear some extremely frustrating news at my appointment-  I told my OB’s colleague (my OB was not on call when my last baby died) that I wanted all possible genetic and pathologic testing done on my baby (even though we had done PGS and believed the baby to have normal chromosomes).  I wanted a microarray done in addition to the standard tests.  Well, they did attempt to do a microarray and they just confirmed last week that they did the microarray testing on me.  Now, I can understand that things get contaminated when a fetus is only a few weeks along, the fetal tissue is not as easy to distinguish.  But I lost my baby at 16 WEEKS.  My baby was almost 6 inches long.  How could they not get a clean tissue sample for the microarray?  My OB expressed similar annoyance.  So they think now that they do have fetal cells isolated/growing that they can test by the end of the week.  Fingers crossed.

Honestly, I don’t expect to really learn anything more.  I think everything is going to come back normal.  But I would be so angry to lose a piece of the puzzle when we could have had it.  More information and data always feels useful to me, I guess that’s just the kind of person I am.

And no word from Agency S-  ARGH, they are so bad with communication.  Nothing on that front, unfortunately.